Public Health England
The National Cancer Intelligence Network (NCIN) is a UK-wide partnership operated by Public Health England. The NCIN coordinates and develops analysis and intelligence to drive improvements in prevention, standards of cancer care and clinical outcomes for cancer patients.
We are a network of organisations working across the UK, including the National Cancer Registration Service (NCRS), the NHS and health departments, cancer charities, research funders and other organisations with an interest in using information to improve outcomes for cancer patients. The Network is co-ordinated by a small National Coordinating Team in Public Health England.
Most of our funding comes from Public Health England. Macmillan Cancer Support, Cancer Research UK and the Department of Health also provide funding.
Our aims and objectives cover five core areas to improve the quality and availability of cancer data from its collection to use:
- Promoting efficient and effective data collection throughout the cancer journey
- Providing a common national repository for cancer datasets
- Producing expert analyses to monitor patterns of cancer care
- Exploiting information to drive improvements in cancer care and clinical outcomes
- Enabling use of cancer information to support audit and research programmes
The National Cancer Registration Service (NCRS) for England sits in the National Disease Registration function of Public Health England in the Chief Knowledge Officer’s Directorate. The NCRS was established in 2012 as a national service from 8 former regional cancer registries across England and retains a local office in each of the regions. The NCRS now receives data directly from more than 500 local data systems, 12 national data feeds and includes cases from more than 1400 weekly multidisciplinary team meetings. Data comes from over 160 acute trusts and a range of private providers; specialist teams in all the local offices work with each provider to ensure that the burden of data collection is minimal and that we use data that is part of their routine clinical processes or already collected as part of pre-existing data returns (for example the National Cancer Audits). When combined these sources deliver over 200,000 records each month and span pathology reports, patient administration data, imaging, and multi-disciplinary team meeting information. Details of treatments including radiotherapy, surgery and chemotherapy are also collected from other sources such as the Systemic Anti-Cancer Therapy (SACT) project and there are links to all three cancer screening programmes.
Please send data requests to this address: firstname.lastname@example.org.