National Disease Registration Service, England

The National Disease Registration Service (NDRS) collects, quality assures and analyses data on patients with cancer, congenital anomalies, and rare diseases. 

It provides robust surveillance to monitor and detect changes in health and disease in the population. NDRS is a vital resource that helps researchers, healthcare professionals and policy makers to better understand population health and disease and informs decisions about NHS services and the treatments people receive.

The data is provided by patients and collected by the NHS as part of their care and support. The NDRS uses the data to help: 

• understand cancer, rare diseases, and congenital anomalies
• improve diagnosis
• plan NHS services
• improve treatment
• evaluate policy
• improve genetic counselling

NDRS is made up of 2 disease registers:

• the National Cancer Registration and Analysis Service (NCRAS) and  
• the National Congenital Anomaly and Rare Disease Registration Service (NCARDRS)